Pictorial Representation of Illness and Self Measure (PRISM): A Novel Visual Instrument to Quantify Suffering in Liver Cirrhosis Patients and Liver Transplant Recipients

BACKGROUND: The level of suffering of chronically ill patients does not necessarily correlate with illness severity. In this study, we evaluated the burden of suffering and its impact on health-related quality of life in liver transplant recipients and liver cirrhosis patients. MATERIAL AND METHODS:...

Authors: Kabar, Iyad
Hüsing, Anna Katharina Elisabeth Pia
Maschmeier, Miriam
Duemke, Marina
Voeller, Carolin
Schmidt, Hartmut
Heinzow, Hauke S.
Division/Institute:FB 05: Medizinische Fakultät
Document types:Article
Media types:Text
Publication date:2018
Date of publication on miami:09.05.2019
Modification date:23.01.2020
Edition statement:[Electronic ed.]
Source:Annals of Transplantation 23 (2018), 674-680
Subjects:Liver Cirrhosis; Liver Transplantation; Quality of Life
DDC Subject:610: Medizin und Gesundheit
License:CC BY-NC-ND 4.0
Language:English
Funding:Finanziert durch den Open-Access-Publikationsfonds 2018 der Deutschen Forschungsgemeinschaft (DFG) und der Westfälischen Wilhelms-Universität Münster (WWU Münster).
Format:PDF document
URN:urn:nbn:de:hbz:6-55109514861
Permalink:http://nbn-resolving.de/urn:nbn:de:hbz:6-55109514861
Other Identifiers:DOI: https://doi.org/10.12659/AOT.910278
Digital documents:artikel_kabar_2018.pdf

BACKGROUND: The level of suffering of chronically ill patients does not necessarily correlate with illness severity. In this study, we evaluated the burden of suffering and its impact on health-related quality of life in liver transplant recipients and liver cirrhosis patients. MATERIAL AND METHODS: The Pictorial Representation of Illness and Self Measure (PRISM) was used to explore levels of suffering in outpatients of Münster University Hospital, Germany. Self-illness separation scores were analyzed as a measure of disease-specific burden of suffering. Health-related quality of life was measured using the Short Form Health Survey (SF-36). RESULTS: Data from 201 subjects were statistically analyzed. Median Self-illness separation scores for liver transplant recipients and patients with liver cirrhosis were 13.5 (minimum/maximum: 0.2/25.6) cm and 6.3 (0.1/25.6) cm (p